Definitions and terminology
According to the Pan-Dorset Carers Steering Group Valuing Carers Strategy a carer is:
The Care Act definition is:
A young carer is defined by the Children & Families Act 2014 as:
Terminology
Government and the adult social care professional community frequently use terms including “informal carer” and “unpaid carer”. The carers that we spoke to were clear that these terms do not describe their role. Simply “carer” is sufficient and preferred. “Informal” suggests that it is only a casual role, rather than being an expert on the life of their loved one. “Unpaid” emphasises the transactional, and is particularly offensive when considered in light of the low levels of state support for carers. For those in receipt of Carers’ Allowance, “unpaid” can simply be confusing.
It is important not to categorise or label carers too rigidly; however, when considering the different types of service, a carer may require at the various stages of their journey and for commissioning purposes it is helpful to consider the various types:
- adult carer (aged 18+)
- working carers
- parent carers of an adult dependent with a disability or who is disabled
- young adult carers (16 to 25 years)
- young carers (under 16)
- sibling carer
- occupational carers
In avoiding terms such as “unpaid” or “informal”, we will need to be mindful that in some instances this can be considered to include those who do receive payment for their work. This includes not only those who are employed by a care agency, but also those self-employed as personal assistants and those who care for others as part of a Shared Lives arrangement. When we are describing carers, therefore, and wish to make the distinction between these responsibilities, we will need to take time to set out what we mean, rather than use shorthand terms such as “unpaid carer”.
Continuing to deliver the objectives in the Together with Carers, a Dorset Vision
The Together with Carers – A Dorset Vision was written by organisations working in partnership towards integrated health and social care services including carers, Dorset Council, Carer Support Dorset, BCP (Bournemouth Christchurch Poole) Council, NHS Dorset, University Hospitals Dorset NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust, Dorset County Hospital NHS Foundation Trust, Dorset GP Alliance, Dorset Parent Carer Council, Parent Carers Foundation, NHS England and NHS Improvement. The Council are committed to building on this to deliver its priorities:
- ensure all carers are valued, visible, and heard
- provide all carers with choice and opportunities to take breaks from their caring role, as well as access to support in a crisis
- understand carers’ personal needs and situations and treat everyone fairly
- support all carers to have a meaningful and fulfilling life, alongside and after caring
- provide information, advice, guidance, and practical resources to enable carers to carry out their caring role
- ensure carers’ own physical, emotional, and mental wellbeing are supported
- be honest, consistent and work together to manage expectations
Our Dorset’s Together with Carers, A Dorset Vision is an ambitious one that was endorsed by carers UK Dame Philippa Russell DBE. It aims to change and improve a complex network of people, processes and pathways supporting carers. Dorset Council will continue to contribute to the delivery of the Vision’s objectives to ensure the quality of service delivered.